“I rubbed shoulders with hell”: Henri Sannier, ex-presenter of the 20-hour newspaper, tells his life with a rare disease, polyradiculonévritevite

< img class = "responsive-Img" SRC = "https://images.mamiLibre.fr/api/V1/images/View/67a250d141b2eb07e31dee7a/lange/image.jpg?v=1" Alt = "Henri Sannier:" >Henri Sannier: Dr – Marie Etchegoyen < P Class = "Article-Full__CoPo" > In & quot; the day when I have reappected to walk & quot;, published on 5 & nbsp; A rare disease, chronic polyradiculonevitis.

< P > In France, three million people are affected by a rare disease. Henri Sannier recounts his obstacle course with an unknown disease. < P Class = "Txt-Question" > How are you ? < P >It's okay, I’m remarrier, even if I still have balance problems. I do not make marathons but I can redo mountain biking and bicycle, I renewed my car, because I had been removed my license, like all people who have an attack on the nervous system. < /p > < P > I swim, I travel … I rubbed shoulders with hell but there, it's much better. I had lost 14 kilos, I took over 6 or 7, it's already not bad. < P > The problem for me is that it does not go fast enough, I would like it to be much faster. < P Class = "TXT-Question" > Four years ago, you felt the first symptoms of chronic polyradiculonéverite. You tell this route, mixed with your memories in a fourth book which, once is not custom, is not part of your passion for sport … < P >I made this book to speak on behalf of all those who are like me, who complain, but who do not speak. I didn't write this book to talk about me, but to give people the desire to fight. I met a lot of people in hospitals, who are not fighting. You have to fight, hurt yourself, and sometimes you have a result. As I am an eternal optimist, it may have been easier for me than for others. But I have always had the secret hope that everything would be fine. I never told myself that I was at the end of the way. You should never give up. This is not a guarantee, but it is an essential condition for getting out of it. < P > What scares me in the name of the disease is chronic, that means that you are never cured. < P Class = "Txt-Question" > How to simply describe this affection ? < P >The antibodies present in my blood plasma, instead of protecting me, are giving up against me. This is the principle of autoimmune disease. It fell on me when I have a healthy life, that I did a lot of sport. < H2 Class = "TXT-INT" > “I am” Monsieur everyone “, a little lost in the world of medicine” < P Class = "Txt-Question" > The first signs appeared after a serious bicycle accident, it was the trigger ? < P > This is what I have long thought. All the specialists I met tell me that no, and my wife reminds me that I had started losing weight before … I did not realize it. < P >The most likely hypothesis is that I was in contact with a virus responsible for these disorders, you will never know when and how. But you know, everyone is looking for and hacks in this area … Right now, I'm not taking a medication for example. Except my plasmapheresses, I am taken from blood and changing my plasma, every eight weeks. 200% Deposit Bonus up to €3,000 180% First Deposit Bonus up to $20,000

< P Class = "Txt-Question" > You tell how difficult things have been, for two years of medical wandering, despite the commitment of caregivers, the support of your loved ones … This is the course of “Monsieur everyone” in the face of a rare disease ?

< P > completely, I am the “Mister everyone lost in the world of medicine”. I had gone to the hospital once, I was seven years old, for appendicitis. And also for a leg injury. < P >I found myself in this environment, with very available people, but who are looking for. No one had the same diagnosis, it was an insidious disease. The teams have shown a lot of wisdom and humility. < P > < IMG Class = "Std-Img_mg Responsive-Img" SRC = "https://images.mamidilibre.fr/api/v1/images/view/67a2513016fb251efd42165b/full/image.png?v=1" Alt = "7000 rare diseases are identified."/> 7000 rare diseases are identified. Dr – Sophie Wauquier < P Class = "Txt-Question" > That is called Henri Sannier, that we are a little known, does not change anything ? < P >No, people sometimes recognized me, they gave the best of themselves, but they gave the best of themselves for everyone. In addition, I fell ill in the middle of Covid, I was not their main concern! < H2 Class = "TXT-INT" > “I accepted the one I have become” < P Class = "Txt-Question" > The book is also a big thank you to the French medical system… < P > Yes, they are available, they have always been devoted, whether at the CHU d'Amiens, at Pitié Salpêtrière or at the Berck rehabilitation center… < P Class = "TXT-Question" > irony of fate, you were very committed in the challenges of the Telethon, or associations like “Cardiac surgery” … < P > Yes, I was fully! I now hope that the Telethon will allow you to discover the genethon, and that we will find something to fight against my illness. < P Class = "Txt-Question" > How do you get this test ? < P >The creed is that you have to fight, never give up. When it was not going, I closed my eyes and I was thinking about the good times of my professional and personal life. You have to step back. We all have secret images, moments we loved, beautiful encounters, you have to think about that, and you forget that you are not going well! It has to go well in the head. < P > Today, I would like to use a marathon, make a cycling race, I cannot. The suffering is there.

< P Class = "TXT-Question" > We must accept to become different, with the disease ?

< P > Yes, it is the hardest. My anxiety is that I can be stored, it haunts me. I pay attention to. < P > Me, I accepted the one I have become, and I am lucky to be very surrounded by my family, and my wife who was my caregiver. When you are sick, you don't realize. We ask a lot of things. The day I reappected to walk, Ed. of the rock, 19 euros. I subscribe to read more